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 ©2007 Columbia University SMA Clinical Research Center Neurological Institute updated February 11, 2008 comments | sitemap |
Educational Seminars 
Columbia University's Spinal Muscular Atrophy Clinical Research Center has initiated a monthly educational and support group for parents who have children with neuromuscular diseases. Lectures have been ongoing since December 2006 and have been very well received. As part of a community outreach program, we will continue to strive to present monthly lectures, hands- on programs and interactive discussions that families of our clinic find useful. These evening presentations allow for a great networking opportunity among the parents and families, as well as, between the staff and families. We are well aware that decisions on best care are not made amongst medical professionals alone. We invite you to review the lectures and attend the new: UPCOMING LECTURES Saturday, April 5, 2008 Columbia University's SMA Day  See flyerPAST LECTURES Thursday, September 20, 2007 Stem Cell Research Update Dr Hynek Wichterle See flyerThursday, October 18, 2007 Physical Rehabilitation Dr Nancy E. Strauss See flyerThursday, November 15, 2007 Genetics Of Neuromuscular Disease Dr Chung See flyerDecember 14th 2006- Research Update presented by Dr. Petra Kaufmann who provided research information and addressed upcoming SMA projects. This initial meeting was very informative and focused on the history of clinical trials in SMA, as well as the state of upcoming trials. The first seminar gave families the opportunity to ask questions about the mechanisms of medications, timeline of clinical trials and voice their opinions about the advantages and disadvantages of their study experiences. January 18th 2007- Adaptive Toys & Equipment. Several local companies gave quick presentation on their philosophy, services and funding. In addition, Laura Nellen discussed her experiences as an individual with SMA and how her diagnosis affected her participation in academic and social environments. Positive feedback was given by all who attended. February 15th 2007- Orthotic & Bracing Needs. This was an informational presentation given by orthotists discussing bracing & orthotic needs for children with neuromuscular disease. March 29th 2007- Metabolic & Nutritional Issues presented by Dr. Darryl De Vivo and Dorcas Koenigsberger PNP who gave and informational presentation discussing the metabolic & nutritional needs of children with neuromuscular disease. April 26th 2007- Advocating for your child and navigating through the legal system. This was an informational presentation given by Sheryl Frishman (Frishman & Farber Law Firm) who discussed the legal rights of children with special needs. Issues discussed were education, equipment and other available resources. May 17th 2007- Pulmonary Hygiene for Individuals with Neuromuscular Disease presented by Dr. Anastassios C. Koumbourlis who discussed pulmonary anatomy, care and options for children with neuromuscular disease. June 28th 2007- Tavern on the Green SMA Awareness Event  top |
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