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 ©2007 Columbia University SMA Clinical Research Center Neurological Institute updated March 3, 2008 comments | sitemap |
Clinical Research Update 
Clinical Study of Spinal Muscular Atrophy **OPEN FOR ENROLLMENT** 
Research in Spinal Muscular Atrophy: We are conducting a clinical research study for patients with spinal muscular atrophy. The goal of this study is to obtain information needed to plan a clinical trial in spinal muscular atrophy. This research is being done at three centers on the east coast - Columbia University (New York City), Children's Hospital (Boston), and Children's Hospital (Philadelphia). Participants are evaluated at one of these clinics regularly at no charge. During each visit, participants undergo several tests. The tests are safe and only a few of them cause mild discomfort. The information gained in this research is an important step in establishing a clinical trial for spinal muscular atrophy. To find out whether your child qualifies, please call or email the study coordinator closest to you. » Research network: Pediatric Neuromuscular Clinical Research Network Study Team:  Darryl C. De Vivo, MD (PNCR Network Director) Petra Kaufmann, MD, MSc (Principal Investigator) Basil Darras, MD (Clinical Investigator) Richard Finkel, MD (Clinical Investigator) Rabi Tawil, MD (Investigator, Data management and statistical analysis) Michael McDermott, PhD (Statistical Investigator) Wendy Chung, MD, PhD (Genetics Investigator) Clifton L Gooch, MD (Clinical Investigator, EMG) Jessica O'Hagen (Clinical Coordinator and Clinical evaluator/physical therapy) Andrei Constantinescu, MD, PhD Jacqueline Montes, PT, MA, NCS (Physical Therapy)To contact us: New York City Jackie Montes, PT - Clinical Coordinator Phone: 1-212-342-5767 E-mail: » jmontes@neuro.columbia.edu  top |
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