SMA Resources. Spinal Muscular Atrophy Clinical Research Center. Columbia University Department of Neurology

This website is supported by the CDC Division of Human Development and Disability Grant Number 1H75DD000473-01

SMA Resources

Planet SMA

will strive to raise funds to aid SMA Support, Inc. in its effort to educate the public and to provide financial aid to help kids and families living with SMA. And in a continued effort to create unity within the SMA community, we will also work side-by-side with other SMA organizations dedicated to raising funds for SMA support and/or research.

Cole's Quilts

(www.our-sma-angels.com/colesquilts)
Quilts made for babies with SMA. Learn more by visiting the site

Resources for Children w/ Special Needs Inc.

200 Park Ave. South
Suite 816
New York, NY 10003
(212) 677-4650

Links

CME course manuals (pdf format):

- CHOP INTEND for SMA Type I - Manual of Procedures [pdf]

- CHOP INTEND for SMA Type I - Score Sheet [pdf]

- Revised Upper Limb Module for SMA Type II and III (Manual of Procedures) [pdf]

- PNCR Networkfor SMAHammersmith Functional Motor Scale Expanded for SMA (HFMSE) Manual [pdf]

- Hammersmith Functional Motor Scale Expanded for SMA (HFMSE) [pdf]

- Revised Upper Limb Module for SMA Type II and III (Score Sheet) [pdf]

Online resources:

- Spinal Muscular Atrophy Foundation
patient

- Andrew's Buddies

- Cure SMA

- Muscular Dystrophy Association (MDA) USA

- Miracle for Madison

- Exceptional Parent Magazine

- Dylan's Angels

- PNCR

- www.our-sma-angels.com/ethan

- Motor Neuron Center

- SMA Indiana Patient Registry

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